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Blog Posts

May 2012 UnitedWithDisabilities Community Newsletter

Posted by Ben Munoz on May 28, 2012 at 12:06pm 0 Comments

Dear Friends and Family of UnitedWithDisabilities,

We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient…

Continue

OUR ONLINE PRESENCE IS GROWING!!!

Posted by Armando Abrero on May 22, 2012 at 7:52pm 0 Comments

OUR ONLINE PRESENCE IS GROWING!!!

Check out this link to view Ben's Friends FB-Twitter Milestone.…

Continue

Trabasack Launches Innovative New Media Mount

Posted by trabasack on May 15, 2012 at 10:00pm 0 Comments

Trabasack Launches Innovative New Media Mount

 

 

Hi,

I am Duncan Edwards, my son has a rare disease Dravet Syndrome, a devastating form of epilepsy. He…

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When Sickness Strikes the Family – Caring for the Children

Posted by Armando Abrero on May 6, 2012 at 11:07pm 0 Comments

When Sickness Strikes the Family–…

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Forum

Re: rheumatologist in sacramento calif

Started by siskiyousis in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by John "JC" Colyer May 20. 1 Reply

Hi, I am looking for a rheumatologist in Sacramento, Davis area as well as going down to SF.  I live in Northern Calif above Redding so prefer someone in Sac/Davis but would go to SF area if the right doctor is there.   I would like a doctor that…Continue

Tags: San, Francisco, Calif, Sacramento, for

What would you do to comfort a sick friend?

Started by Armando Abrero in Recommend a Doctor, Therapist, or Clinic (Positive Review Only). Last reply by siskiyousis May 19. 1 Reply

"What would you do to comfort a sick friend?"Aside from the usual bouquet of flowers and basket of fruits, I'd like to hear your suggestions, especially from patients, as you would know from your end what cheers up a sick person.I will be compiling…Continue

How You Can Help Spread the Word About UnitedWithDisabilities.org

Started by Ben Munoz in Recommend a Doctor, Therapist, or Clinic (Positive Review Only) May 19. 0 Replies

Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities.  Without a doubt, we will one day be as large and active as our largest communities, …Continue

Twitter Chat

Started by John "JC" Colyer in Uncategorized. Last reply by John "JC" Colyer May 18. 2 Replies

Hope everybody is well.Would any of you be interesting in being a part of a twitter chat? It could be a fun way to learn about other communities on BF, share your experiences with a rare disease, tell your story and gain exposure for BF and all of…Continue

Tags: Chat, Twitter

Awesome MountainTrike

Started by Alan Thomas (Wales) in Uncategorized. Last reply by John "JC" Colyer May 5. 1 Reply

http://www.mountaintrike.co.uk/The Mountain Trike Offers riders the freedom to venture out around town or into the countryside. Whether that is to the beach, down muddy tracks, over grass or along…Continue

Stickman Communications

Started by Alan Thomas (Wales) in Uncategorized. Last reply by trabasack Apr 23. 1 Reply

 http://www.stickmancommunications.co.uk/When words don’t seem to be working, extreme measures may be needed.To this end the Ensor stickmen cheerfully dedicate their lives to explaining on your…Continue

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Latest Activity

Ben Munoz's blog post was featured

May 2012 UnitedWithDisabilities Community Newsletter

Dear Friends and Family of UnitedWithDisabilities,We are so excited we cannot wait to tell you…See More
yesterday
Ben Munoz posted a blog post

May 2012 UnitedWithDisabilities Community Newsletter

Dear Friends and Family of UnitedWithDisabilities,We are so excited we cannot wait to tell you…See More
Friday

Moderator
John "JC" Colyer commented on John "JC" Colyer's group Affirmation and Quotes
"Don’t base your relationship decisions off of the advice of people who don’t have to…"
Friday
Armando Abrero posted a blog post

OUR ONLINE PRESENCE IS GROWING!!!

OUR ONLINE PRESENCE IS GROWING!!!Check out this link to view Ben's Friends FB-Twitter Milestone.…See More
May 22
Ben Munoz's discussion was featured

How You Can Help Spread the Word About UnitedWithDisabilities.org

Members and friends,We're glad that all of you have managed to find our community, part of the…See More
May 21

Moderator
John "JC" Colyer gave a gift to Jerry The Milkman
May 21

Moderator
John "JC" Colyer replied to siskiyousis's discussion Re: rheumatologist in sacramento calif
"Here's a google search I did, hope it…"
May 20
siskiyousis replied to Armando Abrero's discussion What would you do to comfort a sick friend?
" Here is what I would really appreciate and have in the past from friends/husband. Just take…"
May 19

Bens Friends Blog

Eagle Syndrome - Online Support Group

New member says:


“Thank you, glad I’m not alone!! :-)”

Eagle Syndrome - Online Support Group


Living With Erythromelalgia Online Support Group

“Thank you for the warm welcome from all of you here! I have been living with EM for about 4 months now and learning to adjust to the new normal. It was incredibly encouraging to hear that I am not alone.  Thanks again.”

New member from Living With Erythromelalgia Online Support Group

What is Best of Ben's Friends?

Best of Ben's Friends is a collection of inspirational or informative posts from across our family of patient communities. To nominate a post, discussion, photo, or video, email the link to info@bensfriends.org.

 

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