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Scott Orn
- Male
- San Francisco, CA
- United States
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Scott Orn left a comment for MrsSGMKenyon"Wonderful to have you Mrs. SGM. Please tell us a little more so we know you are not a spammer. :)"
Scott Orn posted a blog postScott's Bio
I’m the co-founder of this site and help run a group called Ben’s Friends (www.BensFriends.org) that builds patient support networks for people with rare conditions. I do this cause I love it. I’ve met so many wonderful friends on this journey.It all started when my buddy, Ben Munoz, had a stroke caused by a rare condition called AVM. Ben survived but during recovery he couldn’t find a support group…so he started one called AVMSurvivors.org. We realized…See More
Scott Orn left a comment for Jerry The Milkman"Big welcome Jerry. It's wonderful that you have a puppy! My dad just got a new dog and they have a terrific friendship!"
Scott Orn posted a status"Thankful for Ben's Friends (http://www.bensfriends.org)- the 90 volunteer moderators, 100+ donors & the patients. It's magic."
Profile Information
- Are you struggling with depression?
- I'm cool.
- Where do you go for help?
- talk to friends
- Do you feel isolated due to your differences?
- NA
- If you are family member, friend, caregiver, counselor, staff or doctor, please share your thoughts...
- I'm a friend. I think JC's idea to start this site is wonderful.
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Scott's Bio
Posted on February 10, 2012 at 7:46pm 0 Comments 0 Likes
I’m the co-founder of this site and help run a group called Ben’s Friends (www.BensFriends.org) that builds patient support networks for people with rare conditions. I do this cause I love it. I’ve met so many wonderful friends on this journey.
It all started when my buddy, Ben Munoz, had a stroke caused by a rare condition called AVM. Ben survived but during recovery he couldn’t find a support group…so he started one called…
Comment Wall (8 comments)
- At 6:07pm on November 15, 2011,
Tina said… hi Scott, Thanks for the welcome! im happy to be here. i hope to make some freinds on here and perhaps not feel so isolated. :)
- At 1:07am on October 7, 2011, siskiyousis said…
- Thanks Scott....never can have enough of sites like this....to get information and spread it. I am looking forward to learning a lot from others. lg
- At 3:04pm on October 2, 2011, Toni said…
- Hello, Scott! The site looks great. Happy to be here. :)
- At 5:20am on October 1, 2011, toowitchie said…
- Thanks so much for the big welcome! My sons are now adults ages 18 and 21, but they are not able to live on their own and "deal" with all of lifes little things.
- At 7:31pm on September 27, 2011, Steve said…
Thanks Scott, I look forward to talking with other folks who have Polymyositis!
Steve
- At 5:10pm on September 26, 2011, Erin said…
- Thanks Scott good to find another forum. Where are you from?
- At 10:29am on September 19, 2011,
ModeratorNinibeth said… - Hola Scott :-)
- At 4:04am on September 18, 2011,
ModeratorJohn "JC" Colyer said… - Hi Scott, Glad your here! Thanks
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