On February 28th which was Rare Disease Day and I got up in front of 500 people and gave this speech, hope it will open your eyes  I am the strength behind ataxia Spinocerebellar Ataxia is a degenerative condition that affects the cerebellum. The main job of the cerebellum is to coordinate the body’s ability to move. Ataxia is a Greek word that means lack of order, and medically it indicates lack of coordination. Ataxia leads to a progressive atrophy of the cerebellum and because of the loss of…See More

On February 28th which was Rare Disease Day and I got up in front of 500 people and gave this speech, hope it will open your eyes  I am the strength behind ataxia Spinocerebellar Ataxia is a degenerative condition that affects the cerebellum. The main job of the cerebellum is to coordinate the body’s ability to move. Ataxia is a Greek word that means lack of order, and medically it indicates lack of coordination. Ataxia leads to a progressive atrophy of the cerebellum and because of the loss of…See More