Connecting and Supporting People With Disabilities
Started May 19 0 Replies 0 Likes
Members and friends,We're glad that all of you have managed to find our community, part of the Ben's Friends network of patient communities. Without a doubt, we will one day be as large and active…Continue
Started Dec 20, 2011 0 Replies 0 Likes
Since others have subsequently asked about organizing groups and meetups in their area, the moderators and I have decided to create this forum discussion so the community can throw out ideas and…Continue
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Ben Munoz posted a discussionPosted on May 28, 2012 at 12:06pm 0 Comments 0 Likes
Dear Friends and Family of UnitedWithDisabilities,
We are so excited we cannot wait to tell you about how our organization is growing, so we’ll go straight at it. We are please to tell you that collectively our patient communities have reached four consecutive monthly peaks in all aspects of our activities, overshooting even the targets we have set ourselves two months ahead!
Here are some highlights:
Total members for all communities…
ContinuePosted on April 21, 2012 at 3:30pm 0 Comments 0 Likes
Dear Friends and Family of UnitedWithDisabilities,
April – the smell of spring in the air!
Spring brings a lot of positive notes: it signals growth and rebirth. As Ben’s Friends, our patient support group is growing real fast. As a member community, you’ll see stats on how we contributed to this growth as reported below. Be assured that no matter how small the contribution may be, it adds up and it is very much appreciated!
Our presence is being…
ContinuePosted on March 23, 2012 at 1:21pm 0 Comments 0 Likes
Dear Friends and Family of UnitedWithDisabilities,
February brought us great strides as our various communities of rare disease support groups gathered the largest number of new memberships of all time! The volume of blog posts, comments and discussions also increased. We at Ben’s Friends commend you all for your active support of our communities!
IN THIS …
ContinuePosted on February 23, 2012 at 2:03pm 0 Comments 0 Likes
Dear Friends and Family of UnitedWithDisabilities,
As you well know, living with disability can be very challenging not only for you but to your families as well. This organization was built with a view to helping you and your families to live up to this challenge by linking you up with people who share similar experiences and have succeeded in maintaining a positive outlook!
Explore more how our community had helped members…
ContinueThis community is part of the Ben's Friends network of patient communities. Learn more at bensfriends.org.
Patient Communities
Acute Disseminated Encephalomyelitis (ADEM)
ADHD/ADD
Adrenoleukodystrophy (ALD)
Amyloidosis
Arteriovenous Malformation (AVM)
Ataxia (International)
Ataxia (U.S.A.)
Atrial Septal Defect
Brain Aneurysms
Charcot Marie Tooth (CMT)
Chiari Malformation
Chronic Inflammatory Demyelinating Polyneuropathy (CIDP)
Crohn's Disease
Disabilities
Eagle Syndrome
Erythromelalgia
Fabry
Fibromyalgia
Glossopharyngeal Neuralgia(GPN)
Lupus
Multiple Myeloma
Myositis
Narcolepsy
Primary Sclerosing Cholangitis (PSC)
Psoriatic Arthritis (PsA)
Synovial Sarcoma
Trigeminal Neuralgia (TN)
Von Willebrand's Disease (VWD)
Other Rare Diseases
"To Know the Joy of Giving"
© 2012 Created by Bensfriends.org
Comment Wall (14 comments)
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hi Ben, Thank u for the welcome :) im happy to be here...
Thanks for the warm welcome :)
This is the 3 group I have come to. I can not find any support and anyone to talk with. I thought there was hope out there. But I can not even get it from people who are having problems like me. Where do I go now? Makes me so sad. To reach out and no one responds. Cat
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